Care for Carley

Care for Carley is a Nonprofit 501 (3) (c) organization that spreads awareness for arthrogryposis and provides resources for affected families.

Mission

Our mission at Care for Carley is to provide vital support and assistance to families and individuals facing the challenges that come with having a child with arthrogryposis. We are dedicated to raising funds and resources to alleviate the financial burdens of those affected, offering them a helping hand during their time of need. Through collaborative efforts and community engagement, we aim to create a compassionate and supportive network that promotes resilience, hope, and empowerment.

Vision

At Care for Carley, our vision is a world where no family or individual is left unsupported in times of adversity. We envision a community that rallies together to extend a helping hand to those facing hardship, ensuring that they have the resources and opportunities to overcome their challenges and rebuild their lives. Through our awareness initiatives, we aspire to spark empathy and understanding, fostering a society that embraces unity and compassion for one another while offering inclusion to those facing different circumstances. Together, we will stand as beacons of hope, fostering positive change and making a lasting impact on the lives of those in need.

What is Arthrogryposis?

Arthrogryposis Multiplex Congenita (AMC) is a rare congenital (present at birth) condition characterized by multiple joint contractures (stiffness) and reduced joint movements. The term "arthrogryposis" is derived from Greek words "arthron" (joint) and "gryposis" (crookedness), indicating the fixed and abnormal positioning of joints seen in affected individuals.

AMC is not a single disease but rather a group of conditions that can have various underlying causes. It typically affects two or more areas of the body, such as the limbs, and can vary in severity from mild to severe.

Causes: The exact cause of AMC is not always known, but it is thought to result from a combination of genetic and environmental factors. Some cases may be associated with genetic mutations or disruptions in fetal development during pregnancy, which can affect the development of muscles, tendons, or nerves, leading to joint contractures.

Symptoms: The primary feature of AMC is the presence of joint contractures, which means that the affected joints are fixed in a bent or straightened position and have limited or no range of motion. The condition may affect the arms, legs, hands, feet, and sometimes the spine. Other features of AMC can include muscle weakness, small or underdeveloped muscles, and, in some cases, additional health issues such as respiratory or cardiac problems.

Treatment: There is no cure for AMC, but treatment aims to improve functional abilities and enhance the individual's quality of life. Depending on the severity and specific manifestations of AMC, treatment may involve physical therapy, occupational therapy, splinting, or assistive devices to promote joint mobility and muscle strength. In some cases, surgical intervention may be necessary to release joint contractures or correct deformities.

It is essential for individuals with AMC to receive comprehensive medical care from a team of specialists, including orthopedic surgeons, physiotherapists, occupational therapists, and other healthcare professionals, to address the specific needs and challenges associated with the condition.
It's important to note that the extent of joint involvement and the overall prognosis can vary widely among individuals with AMC. Early intervention and ongoing support can play a significant role in helping affected individuals lead fulfilling lives.

Copyright © 2023 Dr. Ashley Sullivan